Online and Social Media Resources

Bowel Management for Spina Bifida - A website run by parents and adults with SB who are not medical professionals, but share their successes and lessons learned.  They also have a Facebook group for people living with spina bifida.

Center for Parent Information and Resource
Supporting the Parent Centers Who Serve Families of Children With Disabilities.

Chicago Parent - Special Needs  
An online magazine.

Christopher & Dana Reeve Foundation resource finder  
Search by zip code or location to find local resources and organizations that support people living with paralysis.

Disability Scoop 
An online magazine.

Facebook Groups
These private Facebook groups are a place to connect with others who live with Spina Bifida or other physical disabilities. 

MDJunction Extension
An online supportive community for people with disabilities.

MFTD Waiver Families
Peer support for families of children in the Medically Fragile, Technology Dependent Waiver Program. Click here for their FB group.

SIBS: Supporting Illinois Brothers and Sisters
SIBS is a group that supports brothers and sisters of all ages in Illinois that have a sibling with a disability.

Spina Bifida Kids Group
An online group for parents of kids with spina bifida through BabyCenter.

The Arc's Tech Toolbox™
An online place to find, share, rate and review technology for people with intellectual or developmental disabilities.

Understood
Their goal is to help parents of children living with learning and attention issues.  They provide a lot of online resources to help your child succeed in school, social interactions and everyday life.  

YouTube channels
There are several YouTube channels of people with spina bifida that may be of interest. If you’d like us to add your channel, please let us know. Examples:

https://www.youtube.com/channel/UCjqzbn1YT87FMHFUtKBkjiA

https://www.youtube.com/channel/UCT5-UZESYe1y8GE2jEiWjrg

Updated 10/26/2023