Bowel and Bladder Resources

See also: Medical Supply Companies

*These links are being provided for informational purposes only; they do not constitute an endorsement or an approval by ISBA of any of the products, services or opinions of the institutions, companies or organizations listed. ISBA bears no responsibility for the accuracy or content of the external site or for that of subsequent links.  Consult a healthcare professional before using a new medical supply or program.

Bowel Management for Spina Bifida - A website run by parents and adults with SB who are not medical professionals, but share their successes and lessons learned. They also have a Facebook group for people living with spina bifida. 

This App below called Kids' Guide: Using a Catheter was developed by Pediatric Urology Nurse Specialists (PUNS). It may be a useful tool for learning how to self-catheterize. The App is a companion to the Catheterization Booklet and is designed for children ages 6-12 learning to self-catheterize. It can also help to reassure parents that kids can learn to self-catheterize. The App provides an interactive and fun learning experience, while teaching the importance of emptying the bladder on a set schedule and the simple steps to follow.

Coloplast bowel & bladder how-to guides

Shield HealthCare lifestyle articles & videos 

Society of Urologic Nurses and Associates

To Tell or Not to Tell, is a brand new program from The Simon Foundation for Continence. The newly launched website, Totellornot.org along with a Toolkit (download available on the website) is designed to guide individuals with loss of bladder control through a process to determine the pros and cons of disclosing their loss of bladder control, how to decide who to tell, and lastly, to determine what they want to say.

Patient education fact sheets in English and Spanish. For more information, contact Chicago Metro SUNA.

The Simon Foundation for Continence
Post Office Box 815, Wilmette, IL 60091
847-864-3913
Dedicated to: bringing the topic of incontinence out into the open, removing the stigma surrounding incontinence, and providing help and hope for people with incontinence, their families, and the health professionals who provide their care.  They have an online Simon Fact Sheet Library that includes bladder and bowel information.    

Updated 8/28/2024